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I share all my sporadic and toilet thoughts in here, because I am random like that.

Nov
12 2013

3:34 PM

Health

Comments Off on On unsolicited medical advice.

On unsolicited medical advice.

What is it about illness that opens a person up as a free-for-all repository of the worst, most condescending advice imaginable?

Unsolicited Medical Advice – Nothing about Everything

One word – no. I’ll stop you before you even start.

I’ve stopped talking to people about my health (apart from a trusted 1-2 closest friends) precisely because of this reason. Because everyone seems to want to have a say.

“I think you should change your doctor, I don’t think your current doctor is doing a good job.”

“Why don’t you opt for something more natural? Like Traditional Chinese Medicine.”

“You should seek a third opinion. Your current medications are too expensive.”

“You should take more vitamin A/B/C/D/E (or whatsoever).”

No. I did not ask you for your advice. And no, I don’t think you’re in the position to judge that “my doctor is not doing a good job” or “my medications are not right for me”. Neither should you be dishing out advice when you do not have the full picture. (Which you definitely don’t – I’ve kept 90% of the ‘picture’ hidden. The remaining 10% are the occasional symptoms you see.)

I speak for myself and most chronically ill people out there. I understand your intentions are good/you want to help. But really, no thank you.

Instead, this is what I ask for.

Trust that my doctor and I are allies, that we are working together towards the best possible way to fight this monster that is my illness(es). My doctor is doing his best. So am I.

Just because I am not in what you think is the “optimum state of health” does not mean that my doctor is not doing a good job. We are doing the best we can. It’s challenging to restore a car that has been in a bad accident to it’s original state of glory. Likewise for humans.

I accept my current state of health now (although you might disagree) because it’s already several times better than how it was before – when I was going in and out of hospital every week or even every night.

The road to recovery is not always smooth. There will be hiccups.

Trust in the fact that I am perfectly capable to manage my own health and make sound decisions.

Realize the reason why I am rejecting all forms of unsolicited medical advice is because I’ve been with this long enough to understand myself and my own body, and that I know my own medical history best, and what my current health can and cannot tolerate. (Not because I am stubborn or close-minded, as some people put it. On top of the fact that you’re sticking your nose up somewhere it doesn’t belong.)

There are many other ways to help without walking down the unsolicited medical advice route (which trust me, pisses the person off more than “helping”). Supportive messages when things aren’t going too great is good enough. And even if you’re silent when we’re seated face to face, I’ll still know you’re with me.

Thank you.

It makes me feel like you think this is somehow still my fault. Like, if I really wanted to get better, I would just do the random thing you were telling me about, because obviously that’s what you would do in my situation and then you would get better and then you wouldn’t have this issue. But that’s not reality.

All your unsolicited medical advice totally cured me! (J/k) – The Only Certainty Is Bad Grammar

My painful invisible disease is more real than your imaginary medical expertise.

Unsolicited Medical Advice – Unsolicited Medical Advice Warriors

Comments Off on On unsolicited medical advice.
May
03 2011

7:40 PM

Health

2 comments

Cyclosphorine, please be nice to me. Kthx.

For the past one and a half weeks, I’ve been on Cyclosphorine to suppress my immune system. (I suffer from autoimmune urticaria since about 6 years ago, which turned aggressive only recently, basically causing my body’s immune system to attack my own skin and occasionally, joints.)

Cyclosphorine
Cyclosporine belongs to the group of medicines known as immunosuppressive agents. It is used to reduce the body’s natural immunity in patients who receive organ (for example, kidney, liver, and heart) transplants.

When a patient receives an organ transplant, the body’s white blood cells will try to get rid of (reject) the transplanted organ. Cyclosporine works by preventing the white blood cells from doing this.

(Adapted from MayoClinic.)

It’s a pretty darn strong medication, commonly used to suppress the immune system of transplant patients to prevent organ rejection. I initially had my reservations about it, because of its multitude of side-effects, but eventually took the plunge because otherwise, the illness would just get worse. (And I’ve stopped responding to even the strongest H1 and H2-blockers out there.)

Well, it’s taking its toll – numb fingers and toes, the constant feeling of fatigue and weakness and the occasional nausea. And recently, low-grade fever. All part and parcel of being on Cyclosphorine but side-effects aside, it’s doing a pretty good job and preventing my flare-ups … so far.

I also need regular blood tests to ensure my white cells don’t fall too low, or that my kidneys don’t fail.

Above all, I’m also glad I’ve (finally) managed to find an awesome allergist/rheumatologist to take care of me. He’s one of the very few here in Singapore, so I’m mightily glad.

The doctor, a couple of friends and this forum (contributed to by a host of other people around the world with the same medical condition) has been a great source of support so far.

So, if you know me in real life and have been wondering why hadn’t I called you out in aeons for shopping/lunch/dinner/just bumming around, now you know why. I’ve been basically devoid of energy for quite a while. Please be patient with me, though – I’ll be back to my old self once I assimilate to Cyclosphorine!

Until then, please pardon me while I conk back off to sleep in bed. G’nitey.

Jan
26 2010

Doctor fail.

To that doctor at Serangoon Gardens who examined my mum for presumptive gout late this afternoon.

All this while, my main point of contention was the obvious fact that you were displaying a blatant lack of Emotional Quotient (EQ) and that you have to be more mindful of your tone when dealing with your patients.

You, on the other hand, chose to hurl personal insults at me and demanded me to get out of the room – which I must say, is extremely out of line and highly unprofessional.

For one, you were practically barking orders at my mother right from the very second we entered the consultation room, in that superior, holier than thou tone which you adopted throughout the entire consultation session.

No, I am not picking on your outright frankness (unlike what you seem to think during the whole argument) when you practically spat the following words out at my mother – “At your age, first your knees give way. Then, your neck gives way. After that, your heart will also give way!”

Frank is good. But surely, there is a much better way to phrase that?

Add that on to the fact that you were constantly affirming your position as a medical professional – and how we should only listen to you and not anyone else’s advice, and how we shouldn’t argue when you tell us what to do and such.

Superiority complex, hello?

That was what I called you out upon. But you chose to miss the point altogether, deeming me as misinterpreting what you are saying, telling me that I am oversensitive and that I argue too much – even going to the point of saying that “I will never get a boyfriend because I am like that“.

WHAT. THE. ****?

You boasting about how doctors make use of laboratories, medical technology and theories and “keep emotions out of the picture” to treat a disease does not change the fact that you have terrible EQ. In fact, it only affirms my observations about you.

Dude, you fail to see the difference between emotions, and showing empathy.

You do not friggin’ treat a patient as an inanimate entity in which the disease is located. You treat the PATIENT as a whole – taking into consideration how they feel and paying attention to their rights (respect and dignity included). Not just the disease.

Then, you tried to defend yourself by saying that in the medical profession, words are thrown out the way they are. And even cited examples of how words like “going to hell” and “the patient’s going to die” are thrown around carelessly during lectures.

You’re still missing the point of my argument.

See here, my boy. How medical professionals talk to one another is none of my effin’ business. The crux of my argument is the fact that you are dealing with a PATIENT. Here is where ‘the ability to deal with people on a compassionate level’ comes into play.

Patients have genuine concerns, and are in most cases, either worried or anxious about their condition. Having to deal with doctors like you does not make things any better.

You seem to have this impression that just because you are a doctor who ‘heals people’, you are this superior being who possesses extraordinary powers and how people should marvel at your godliness and bow down to your feet.

Which was probably what led to your outright display of indignation (coupled with the ‘get out of the room’ remarks and personal insults) when the daughter of your patient decided to call you out on your misdoings.

Please. Get off that pedestal you’ve placed yourself on already.

You may have all the necessary paper qualifications, several years of service and experience behind your back, or whatsoever credentials it takes to become a doctor.

However, as long as you have a zilch EQ, terrible bedside manners, and that type of attitude you displayed today, you have failed in your duty as a doctor.

P/S: For the record – no vulgarities were spewed during the actual argument with said doctor. And I was struggling to keep my tone steady despite the verbal assault I was receiving from the other party. GRARR. ANGRY.

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